Did you know parents are having “peanut butter parties” on the lawns outside of our local hospital? The purpose is to introduce their toddlers to peanut butter for the first time. They all sit and wait to see if there is any allergic reaction and figure they are safer if they are close to the emergency department. For many, this seems like a paranoid practise. You know, my thoughts have changed on the matter. I wish I’d done that. Instead, what started out as a normal morning, ended with a frantic mother driving her child to hospital.
I’d made some toast for our 16 month-old and decided on the spot I’d give her peanut butter. You see, our eldest girl has a cashew/walnut allergy, but can eat other nuts. She loves peanut butter. Our middle child has been exposed to nuts, but doesn’t think much of peanut butter and I was pretty sure our third child would have been exposed to peanuts what with eating food off the floor and inhaling a whole variety of snacks stored in our cupboard.
I sat down to drink my tea and within a minute I noticed huge hive-like welts covering her mouth. With speed they started to spread over her entire body. My heart started beating. I couldn’t believe our luck. I woke my husband who started packing me a bag and gave the baby Zyrtec. It was decided I’d drive her straight to hospital as we live less than 10 minutes away. In hindsight, we should have called an ambulance. The drive was one of the worst of my life and got even more distressing when my baby started to cough (a sign her airways were tightening) and then as I drove into the car park she began projectile vomiting out of her nose and mouth.
I looked like a “madwoman” as I pushed her through the hospital corridors to the emergency department, her in a nappy and both of us covered in vomit. She seemed calmer, but I knew it was more serious than I imagined when she was rushed into the Emergency Room’s operating theatre. An oxygen mask was attached to her now-screaming face and a shot of adrenaline pushed into her thigh. The whole experience was terrifying.
At that moment, our lives switched up a gear. I immediately felt ashamed of my thoughts of complacency when packing my eldest child’s lunchbox. The peanut butter was thrown in the bin, so were the peanuts. All items with “traces of nuts” pushed to the side of the cupboard or discarded. We’ve already got an Epipen in our house, now we have two, and we already do the “scan” when out and about for foods with cashews or walnuts in them. We don’t have family dinners at Indian restaurants because of the use of cashew nut paste in foods and pizza with pesto is a no-no. It’s been a life shift for us, but not like peanuts. It’s going to be a whole life change for us.
With one-in-fifty children plagued with a peanut allergy, I have now joined the brigade of parent’s pleading our case for nut-free environments. The “annoying” parents. Please forgive us. Please understand, it’s the uncertainty of the affliction. It’s the lack of control over the actions of others. At home we can control if peanuts, or products with traces of peanuts, pass our child’s lips. Once we step outside, our child’s life is at the mercy of circumstance. It’s no different to having a child without an allergy. Cars, accidents, bee stings, crime – we can’t protect our children (touch wood) from all unknown threats.
I suppose what I’m saying is please don’t judge us – don’t judge for just trying to protect our children. Don’t judge us when we lean over the counter at a restaurant asking if there’s nuts in the food or used in the kitchen. Please don’t judge us when we call your house before coming over and ask you to not leave nuts out. Please don’t judge us when you’re told by the school to not pack home-baked goods or muesli bars in your child’s lunchbox.
I am feeling very uncomfortable about having to be that sort of parent. I am feeling grief at a life we left behind as soon as my child had an anaphylactic reaction to peanuts. I might sound like I’m overreacting, and perhaps I am, perhaps she wont be as acute a sufferer as other peanut sufferers, perhaps we will be lucky. I bloody well hope so with all my heart. Perhaps we wont have to watch our child turn blue as her throat closes over after eating food in a restaurant which was cooked in a wok, which had previously had peanuts in it. But for some that is the reality. And at this stage we are unsure of the severity of her allergy. Until we know more, that is how we must live. Please understand.
* To all of the people on twitter who have provided advice on nut allergies, I thank you so much. I especially thank Vanessa Monaghan, my food allergy stalker, who writes about allergies at her blog Edible Issues. She immediately sent me a number of emails with nut-free food options. I am in love with her.
* And to the universe – we have had enough of hospitals. Please give us a break.
Oh honey, how frightening. I can see that nut-free is going to be more and more established in the future, and we will all get used to it. I don’t judge you, there’s nothing I wouldn’t do for the safety of my child, even if it alienates others. I didn’t even know about the home-baked things in lunch boxes, I had always planned to do that! Seems I have a lot of education to undergo. xx
Scary stuff B. It must be so hard. I know at work we need to be nut aware, and can not claim to be nut free, it’s a legal thing. Having said that, it annoys me no end when people blatantly disregard other people’s children and send along nut products.
They would be the forst to complain if it was their child.
I hope the universe gives you a break soon xxx
What a scary experience. So glad all is OK – and hoping it stays OK for a very long time now! xx
So freaking scary. Tricky had allergy tests as part of a food allergy study and the only result I was really interested in was the peanuts, I was so worried he’d be allergic. He wasn’t, it seems he didn’t get the allergic-to-everything genes from me.
I will honestly say I used to roll my eyes at people who were, what seemed to me, just being paranoid. It was only after being invited to a party with a girl who is deathly allergic to nuts that I started to understand “the rules” after speaking with her parents about how bad it can be.
May your days be nut free, m’dear x
So sorry this happened. Our allergy experience was much less traumatic and I still remember it like it was yesterday. I remember my friend saying I was going to be “one of those parents” but in the past seven years I can honestly say there’s been a major shift in public attitudes towards food allergies. People who are uncooperative or hostile are fortunately in the minority now. That’s the only good thing about peanut allergy – it’s the rock star allergy – because most people understand how serious it is.
I know you feel overwhelmed now, but I promise it will get easier. You’ll work through the food issues and find a comfort zone. There’s much to be positive about too because we’re closer than ever to a treatment. Big hugs to you all and if you need to vent or have questions pop into the #ausallergy twitter chat on Tuesday nights from 8.30pm 🙂
I know where you are coming from. My husband is allergic to
eggs (not life threatening but it makes him a bit sick if he eats them) and we
were told not to introduce eggs to Mst 3.5 for the first year when he’d then be
given a test to see if he was allergic. So. Stressful. I even got to the stage
where I nearly got him a t-shirt to wear that said ‘Don’t feed me egg!’
Some people just didn’t get the potentially serious consequences if he happened
to be allergic and (even though they were fully in the know, I’m talking family
here) would go to feed him things without thinking or checking about eggs.
We’re lucky though because the tests ended up showing that he wasn’t allergic
to eggs, or nuts for that matter.
Then I was diagnosed with Coeliac disease about 18 months ago. And, while it’s
not life threatening in the short term, eating gluten makes me very sick. It
ranges from being having a slightly upset tummy when I get cross contaminated
(happens a lot) to full on sick for a day or so if somebody feeds me something
that contains gluten.
And in the long term the consequences of the disease that I have can be devastating.
But people just don’t get it. They think I’m being annoying and difficult. I’ve
had people say ‘you can just eat the top of the cheesecake and leave the base’
thinking that would be ok. So I know where you’re coming from and I feel for
you but stand up for yourself and your babies which I’m sure that you will do.
(and yes, you need to have no hospital visits for a little
while)
I read that article today when my husband pointed it out to me. I actually think differently.
You have reason to be paranoid, as there is a family history. But for these parents where there was no family history, no reason for them to suspect that something might go wrong, I think they are way over the top. I do realise that family history or not, it doesn’t always mean something, but I know before my daughter I didn’t bat an eyelid about allergies.
My eldest, now 4.5 years of age, she had her first reaction at 2.5 years of age on Christmas day. Do I wish I had done things differently when exposing her to nuts? no. I was actually more thankful that I didn’t make the failsafe cashew paste for her that I had been planning to do for the couple of months prior. Instead she ate some dip on xmas day that contained cashews.
With my next child I did consider exposing him outside the gp or hospital. But I was equipped with knowledge and advice from a specialist on how to do it in the safest way possible at home. Thankfully so far his only issue is reflux. Though I have not kept up the weekly exposure to nut pastes like I am supposed to with him. Why not? the risk is too great to our daughter. While I did do these initially while she was at daycare, I don’t even think that is safe enough now. The chance of traces being left where she could come into contact with them is just too great. I will have to find another way to expose him regularly, maybe through baked goods that he has while out……..but then, I don’t want to responsible for another child reacting to food my child leaves behind…hmmmmm
I am also one of those annoying “nutty” parents. I absolutely feel your pain, my son is allergic to all nuts and with all his other allergies it is a real challenge x Great post!
It sucks big time doesn’t it.
My twins are allergic to peanuts and a range of tree nuts too. I find the hardest thing is just not knowing how severe it is, unless I feed them peanuts deliberately we just don’t know how bad a reaction they’ll have. So on one hand I feel like I am overreacting, and on the other I’m scared witless!
So far it seems our middle boy is not allergic and the advice was to give the baby peanuts and just use the epipen if we had to… But Ive been too chicken!
I hope you guys can wrap your heads around this, and Vanessa is great and super lovely too
Wow. That must have been just horrifying to witness. Terrible.
Our school is nut-free, and whilst I often think, ‘Oh, it would be so easy if I could give them a handful of almonds for morning tea,’ I completely get it. I mean, what’s the big deal? They can have that stuff at home for afternoon tea and peanut butter for breakfast etc. Kids that young just can’t be completely trusted to not share food etc, so it makes perfect sense. What’s the upside in having that food there?
You deserve that break from the universe. I’ll have a word to it for you, hon. 😉
Glad your little munchkin is okay.
xxx
Oh that is my very worst nightmare. Having nut allergic child is scary.
How very veryscary. I feel for you. No-one wants to see their child in anaphalaxis. Thanks for the reminder to be more mindful of nut allergies.
Such an interesting blog post, thank you for sharing this. I am one of those parents that has on occasion before thought “gee, what is all the fuss about” when it came to the “annoying parents”. It took a child with a severe nut allergy joining our playgroup for me to really understand the desperate fear that a parent has to live with on a daily basis if some ignorant and selfish parent forgets the no-nuts rule and makes their kid a peanut butter sandwich for playgroup. I get it now and have actually stopped packing peanut-anything in our lunch boxes even when its just us going out. What would happen if my child dropped her peanut butter sandwich at the playground and a child with an allergy picked it up? No, its not really my responsibility, the parent of the child with the allergy will be the one running after them, but I can still do my bit and so now our peanut butter exploits ar confined to the house!
You are Super Sarah. To go as far as not packing nut products when out and about is awesome. Thank you from me and all parents of children with anaphylaxis to nuts.
I have that similar problem with my almost 22 month old. In the hope that he never develops a life threatening allergy I am supposed to feed him peanut butter and a tree nut paste on a weekly basis, as per my daughters specialists advice. It took me a couple of months to work up the courage (and only did it when DD was at daycare, then would clean him up, stick his highchair in the shower and give him a bath AND put all the small toys able to fit into his mouth away) and I did it for maybe 6 weeks but then I stopped as fear set in again. He hasn’t had any since and that was over 6 months ago :/ I keep saying I will got to my mum’s to bake some things containing peanuts and tree nuts and give to him when out with just me, but then I think, “what if another allergic child comes into contact with it………”.
My thing now is, he likes to kiss his anaphylactic sister on the lips :/ so there is no way I can give him nut products. We have never been a lip kissing family, so am hoping with regular reminders he gets the whole cheek thing.
So so so bloody scary.
I was the mother who fed all three of her babies peanut butter finger sarnies in the Dr’s waiting room, just in case.
Thankfully they are all allergy free.
BUT, after the totally nut free no sharing strict rules of kindy and now primary, I am more than happy to accomodate.
I hope that is your last visit to W&C for a long long time.’
xxx
Going by the near immediate appearance of hives and welts, I’d say the allergy is very severe, and I hope you are successful in keeping nuts out of your life. The school environment is the trickiest one.
Ugh that sounds terrifying!! Glad to hear baby is okay
I know I’m late to this as I have only just discovered your blog but you may be aware that there is research going on at some hospitals to help alleviate the huge reaction to peanuts. I think the aim is to use immunothereapy to build up a tolerance so maybe they still can’t eat peanuts but the reaction will be minimised if the ingestion is small or accidental. The same type of therapy exists for bee stings etc. An example is shown here as a current research project about half way down the page: http://www.rch.org.au/allergy/services.cfm?doc_id=7228
Coming back for another read. Have heard today that Tricky’s allergy test (as part of a study he was in) was basically null and void as the body doesn’t always react the first time it comes in contact with the allergen. It’s made me pretty angry actually, because when he came up as a slight pinking for cashew on the test they said it wasn’t an allergy and it was fine. I took their word and trusted them as medical professionals. I know they’re not infallible but you’d think a freaking allergist would have TOLD ME it’s not always a sign of no allergy.